scleronova

/scleronova

About scleronova

This author has not yet filled in any details.
So far scleronova has created 18 blog entries.

Help get Uptravi to patients!

A new medication for pulmonary arterial hypertension (PAH) Uptravi® (selexipag) is undergoing assessment by the Common Drug Review (CDR) CDR reviews clinical, economic, and patient evidence, and uses this information to make recommendations to the majority of Canada's public drug plans on whether or not medications should be funded and with what eligibility criteria. Uptravi, [...]

By |March 26th, 2016|Uncategorized|0 Comments

Dalhousie University Health Mentors Program

Dalhousie University has a volunteer Mentorship Program where students from various health professions  can meet with you to learn how you are living and coping with your disease. If you are interested in helping to educate our future health professionals about scleroderma,  please  call or e-mail  for more information. Dalhousie Health Mentors Program HealthMentors@dal.ca 902-494-1852

By |October 17th, 2015|Uncategorized|0 Comments

Chair Yoga

CHAIR YOGA :  SUITABLE  FOR  SCLERODERMA  PATIENTS AND THEIR SUPPORT PERSON There is a great chair yoga class on Mondays from 11 to 12 pm which is held in the gymnasium  of the Northwood’s Senior Complex. There is a $3.00 drop in fee to participate in this program.  You must register at the North wood [...]

By |October 17th, 2015|Support|0 Comments

Slceroderma Advocacy

SCLERODERMA ADVOCACY The Scleroderma Society of Canada (SSC) serves as a support for all scleroderma patients and families affected by the various forms of pulmonary hypertension (PH), including pulmonary arterial hypertension (PAH). PAH is a common complication of scleroderma and can be very severe in patients with this connective tissue disease. Why now? In March [...]

By |October 1st, 2015|Uncategorized|0 Comments

Personal Stories – Jessie’s Story

Hello, my name is Jessie and this is my Scleroderma story. In April of 2009 my hands were swollen and very stiff; they also hurt during the twisting motion when I would wring out a dishcloth. I soon noticed that my feet and lower legs would swell a lot by the end of the day. [...]

By |May 24th, 2015|Personal Stories|0 Comments

Survey – Your Input Needed

Scleroderma Support Group Survey Do you have scleroderma? Are you interested in helping advance research on scleroderma support groups? If so, please lend a hand by completing this short 10-15 minute survey! The Scleroderma Society of Ontario has teamed up with the Scleroderma Society of Canada, the Scleroderma Foundation, and researchers from McGill University in [...]

By |May 1st, 2015|Uncategorized|0 Comments

Personal Stories – Michelle’s Story

I feel extremely lucky to be able to look back at my journey with Scleroderma and share my story. I was diagnosed in 2000 at the age of 35. At the time of my diagnoses I worked as a Parks and Recreation Director, I curled a couple of times a week, I didn’t smoke or [...]

By |January 12th, 2015|Personal Stories, Support|0 Comments

Personal Stories – Jason’s Story

My mother was diagnosed with Raynaud’s phenomenon, approximately 25 years ago. Her hands would turn blue and purple and she would often have to wear gloves to complete the most basic of chores, such as hanging clothes or mowing the lawn. Over time, she developed ulcers on her fingers that would break open. She underwent [...]

By |December 4th, 2014|Personal Stories|0 Comments