Living with scleroderma can bring with it many unexpected expenses. We recognize that these expenses may create a significant burden to the point where people may opt not to receive the recommended treatments. The David Shea Memorial Support Fund has been established to provide financial assistance to those who incur expenses related to the treatment of scleroderma and/or its related symptoms. Applications for assistance are reviewed by a sub committee of the Scleroderma Society of Nova Scotia and take into consideration previous applications and the financial stability of the Support Fund.
Expenses submitted for reimbursement must have been incurred within six (6) months of the date of the application. Applications must be completed in full and include original store receipts. Applications will be considered to a maximum reimbursement of $500. Patients may reapply for support as often as it is needed, however the Scleroderma Society of Nova Scotia reserves the right to decline additional funding to a patient if it will bring the total reimbursement to over $1,000 in a calendar year.
The Scleroderma Society of Nova Scotia reserves the right to consider exceptional circumstances and expenses incurred outside of the guidelines noted above, on a case by case basis. Applications must clearly indicate the applicant’s full name and contact information, including an email address if available. The Scleroderma Society of Nova Scotia is not responsible for lost or stolen reimbursements.
David Bryan Shea
David was diagnosed with Scleroderma in 2005 after experiencing circulatory issues during a summer camp with the Canadian Army Reserves. He left the army in 2006, got married, and went back to school. David started to experience symptoms of the disease such as fatigue, raynauds, and hardening on his fingers on one hand.
In 2008, David joined his wife and moved to Halifax, Nova Scotia. Here, he started seeing a rheumatology specialist who was focusing on Scleroderma. He began to volunteer and became a great advocate for Scleroderma and medical marijuana. As years passed, David’s symptoms worsened. He became quite fatigued, his short term memory was bad, his lung velocity went down to 40%, and he had hardening on his lungs and his fingers. David spent the cold, winter months inside and then flourished in the summer, where he was an avid gardener and social butterfly!
During the winter of 2014, David hurt his shoulder exercising at home, and couldn’t seem to recover from it. When the weather started to get warm, David wasn’t and didn’t improve. David went to the hospital near the end of August where he spent his last days, passing away on September 11, 2014.
When the Nova Scotia Scleroderma Society told me they were creating a patient support fund and they wanted to use David’s name, I thought there was no better way to keep his spirit alive. I told them David would be so honoured and was always trying to help out in any way he could, and this way he is.