Welcome to the Scleroderma Nova Scotia Website
Here you will find information about Scleroderma, Upcoming Events and Activities, Fundraisers and Personal Stories as well as Support. Please check back often for updates.
On behalf of the Scleroderma Society of Nova Scotia (SSNS), thank you for taking the time to visit our website. Within these few pages, we’ve attempted to highlight some of the activities that we offer, provide information on our annual Run/Walk and the David Shea Memorial Patient Support Fund, and many other topics that relate to Scleroderma.
Scleroderma is life altering to those living with the disease and also has a tremendous impact on those in the lives of patients. SSNS was created to support all individuals who identify with this disease, including patients, family members, friends and colleagues. Although Scleroderma is a rare disease, together we can make a huge difference.
SSNS offers several options for those who are interested in becoming involved in the organization. Our signature event, the annual Run/Walk in the Park, is held every June and allows those who are impacted by or interested in the disease, to come together and support one another. In addition, support group meetings are held on a monthly basis, where participants receive emotional support as well as information on how to better live with the disease. Depending on the season, other activities are offered and relevant information is continually updated on this website. I encourage you to follow the links on the main page or to contact us if you would like more information on any of these activities that may be of interest to you.
The Society is especially proud of the David Shea Memorial Patient Support Fund, which was established in 2015. This Fund is an opportunity for our organization to financially assist those who are undergoing treatments for Scleroderma. Complete details of this program can be found within our website. I encourage everyone who is interested to apply for assistance. We are here to help you!
Communication is key to the success of any organization and we strive to keep our community updated on our activities as much as possible. Information will be shared via email, Facebook, Twitter and also posted on this website. Be sure that you’re linked to any or all of these communication tools.
I hope that you find the information within this website useful. I encourage you to provide us with your feedback so that we may better serve your needs. We welcome all comments and suggestions.
President, Scleroderma Society of Nova Scotia